The “ASSOCIATION OF PARENTS OF CHILDREN WITH NEOPLASTIC DISEASES OF NORTHERN GREECE – LAMPSI” attaches particular importance to security and respects the privacy and confidentiality of your personal data. For this reason, we invest time and resources to protect your privacy.In this effort, we are in a constant process of information and education, so as to fully comply with the applicable national, European and international legal framework and in particular with the General Data Protection Regulation 679/2016 of the European Union.
PURPOSE OF THIS POLICY
We would like to inform you about the way in which your personal data is collected, stored, used and transmitted, the security measures we take to protect it, the reasons and the period for which it is stored, but also about the type of personal data collected. It concerns any act or series of acts performed with or without the use of automated means, on personal data or on sets of personal data, such as collection, recording, organization, structuring, storage, adaptation or alteration, retrieval, information search, use, disclosure by transmission, dissemination or any other form of disposal, association or combination, restriction, deletion or destruction.
This Policy is updated periodically and may be modified whenever necessary, without prior notice, always within the applicable legal framework and in accordance with any changes in the applicable legislation on the protection of personal data. We therefore recommend that you check this Policy periodically to be informed of any changes that have been made.
What is personal data?
Personal data is any information relating to a specific natural person or a person whose identity can be verified (e.g. name, identity number, address, etc.). Data relating to health (physical or mental condition, receipt of medical services, etc.) are included in the general term personal data but constitute a special category of data. LAMPSI will not process your personal data without your consent for purposes other than those specified in its statutes. However, LAMPSI reserves the right, in exceptional cases, to process your personal data to the extent permitted or required by law, and/or by court decisions or prosecutorial orders/provisions.
How is personal data collected?
Your personal data is collected in the following ways:
(a) you provide them to us when you contact us in order for you or a third party to receive assistance from LAMPSI within the framework of the purposes of our statutes, when you submit membership or volunteer applications, etc., when you submit a job application to LAMPSI, when you complete electronic forms or send electronic mail (“e-mail”), through the website at the domain name www.lampsi.org
(b) it is provided to us by a third party partner after you have given your consent (e.g. a treating physician).
(c) automatically through the browser or mobile device you use to access our website.
What kind of personal data is collected?
In summary, the personal data collected and further processed include:
– your name, address and general contact details (including email address and telephone number), yours or those of your relatives, -health data reported to us either by you or by third parties with your consent
– other information derived from the use of the website that we use for the purpose of informing you about the actions organized by LAMPSI through its websites and/or your registration in one or more of them:
In addition to the above data that you provide to us, technical information that constitutes personal data may be collected, such as the Internet Protocol address (“Internet Protocol address”) of your device [e.g. computer, laptop, tablet, smartphone]. This technical information is used for the smooth operation and performance of the website, and is not permanently stored in our infrastructure.
More details regarding the technologies used on our websites (“cookies”, “internet tags”, etc.) are listed below.
What principles govern the processing of personal data by LAMPSI?
LAMPSI processes your personal data fairly and lawfully for clearly defined purposes referred to in this Policy and in our Statute. Your personal data processed by LAMPSI are limited to what is strictly necessary to achieve these purposes, are accurate and up-to-date, are kept for a period determined by the purposes of the processing, are protected by adequate security measures and are not transferred to countries that do not ensure a satisfactory level of protection.
Who collects personal data and for what purpose? Is it transferred to third parties?
Personal data is collected and processed by the authorized employees of LAMPSIS per service, for the sole purpose of providing the respective service. It is only transmitted to authorized third parties who are bound to maintain confidentiality, when they are required to have access in the context of providing the said services (e.g. doctors).
Upon your instruction, your personal data may be transferred to third parties.
LAMPSI undertakes not to market your personal data by making it available for sale/rent, giving it/transferring it/publishing it or disclosing it to third parties or to use it in any other way and for other purposes that may risk your privacy, rights or freedoms, unless required by law, a court decision/order, an administrative act or if it constitutes a contractual obligation necessary for the proper functioning of LAMPSI and the performance of its functions.
Some of your simple personal data may be transferred to partners or third parties, complying with the terms of this Policy and committed to maintaining confidentiality and secrecy, who act on our behalf for further processing for the purpose of evaluating and improving the functionality of the website, data management and technical support. These third parties have contractually committed to us that they will use the personal data only for the above reasons, and will not transfer the personal information to third parties, as well as will not disclose it to third parties unless required by law.
How long is my personal data kept?
Based on our legal obligations and our Policy, we keep the personal data of natural persons for as long as the relevant legislation determines and as specifically recorded in the relevant Processing Activities Record that we keep under article 30 of Regulation 679/2016. In particular, the personal data:
- Members and volunteers of LAMPSI are respected until their retirement.
- Individuals, parents and children, who have received assistance from LAMPSI are kept until the end of their illness.
- Members of the Board of Directors of LAMPSI are also respected for a specified period after the completion of their term and until their retirement as members of LAMPSI.
What are my rights? What can I do if I have an issue with the processing of my personal data?
You have the right to ask us at any time what personal data we process about you, for what purposes we do so, whether we provide it to third parties and to whom, as well as other relevant information. You also have the right to receive a free copy of your personal data upon request. Other rights that you have under the relevant legislation on the protection of personal data include the right to request the updating and/or correction of your data, the cessation and/or restriction of their processing and their deletion from the files of LAMPSIS, provided that there is no other legal obligation to retain them. You also retain the right to portability and/or opposition to the processing of your personal data.
In particular, with regard to the newsletter service, there is the possibility of unsubscribing by following the instructions included in each newsletter, in order to stop the processing of personal data related to this service.
You can exercise all of your above rights by submitting a written request to lampsi@lampsi.org. For any issue you may have regarding your personal data and/or for clarifications, you can contact the Data Protection Officer of LAMPSI, either by telephone at 2310 943396 or by e-mail at dpo@lampsi.org or by fax at 2310 943396. In any case, you have the right to contact the competent Authority for the Protection of Personal Data (APDP, www.dpa.gr) and/or to file a legal complaint. Each request submitted must be accompanied by appropriate evidence of identification and the required information must be provided (e.g. the data that needs to be corrected), as described in the terms of use of each service. LAMPSI may request additional information necessary to confirm your identity.
LAMPSI makes every effort to ensure that your requests are answered without delay and in any case within one month of their receipt. This deadline may be extended by two (2) more months, if necessary, taking into account the complexity of the request and the number of requests. You will be informed of this extension as well as the reasons for the delay within one month of LAMPSI’s receipt of the request. If you submit the request by electronic means, the response will be provided to you, if possible, by electronic means, unless you request something different (e.g. a written letter).
In any case, you can contact our Association’s Data Protection Officer, the Personal Data Protection Authority (PDPA) and/or file a legal appeal, if you believe that your above rights have been violated.
Is my data safe?
LAMPSI considers the privacy of the persons whose personal data it processes to be extremely important, whether its members, volunteers, employees, patients and their relatives, and makes every effort to protect them, both in terms of the confidentiality/confidentiality of the information and its integrity (not to be altered, not to be accidentally destroyed, etc.).
LAMPSI takes all appropriate organizational and technical measures, designed to protect information from loss, misuse, unauthorized access, disclosure, distortion or destruction and ensures the fair and lawful collection and processing of personal data as well as their secure storage in accordance with the relevant provisions of both Greek and EU and international law regarding the protection of individuals from the processing of personal data, as well as the decisions of the Personal Data Protection Authority, preserving the privacy and confidentiality of any information it comes to its knowledge. In particular, this Policy takes full account of the provisions and articles of Regulation (EU) 2016/679 of the European Parliament on the protection of natural persons with regard to the processing of personal data and on the free movement of data (“General Data Protection Regulation” – “GDPR”) and constantly makes every effort to comply with it.
Access to the contact details of visitors/users of the LAMPSIS Website is limited to authorized persons who are bound to confidentiality (employees, service providers) and who are reasonably considered to need to know this information to provide products or services to visitors/users of the Website or to perform their work.
-What are Cookies & internet tags?
Cookies are small text files containing information that are stored in the browser of the visitor/user’s computer while browsing the Website and can be removed at any time. The LAMPSI Website uses cookies for the following purposes:
– For the smooth operation of the Website, at the required speed.
– To identify the device you use to navigate the Website, the browser and/or the operating system you use, in order to provide a personalized navigation and/or use experience of the LAMPSI Website.
– To save your settings during a visit or between visits (such as your username, preferred language, or social media usage), so that you avoid having to re-enter certain data.
– To improve the performance and/or security of the Website.
– To provide content based on your interests and needs.
– To analyze how you browse and/or use the Website.
LAMPSI DOES NOT use cookies in the following cases:
– To collect personal data without your consent.
– For the transmission of your data to advertising companies.
– For the transfer of your data to third parties without your consent.
The types of cookies used by the LAMPSI Website are “persistent cookies” and “session cookies”. Also, some third-party services that are enabled on the Website, such as “social media buttons”, place their own cookies on your computer, over which the administrators of the LAMPSI Website have no control. The session cookies used by the LAMPSI Website are deleted after the end of your browsing session and/or after closing the “browser”. Persistent cookies remain on your computer or other device until you delete them, or until the time period specified in the cookie.
You can configure the server (browser) you use in such a way that it either warns you about the use of cookies in specific services of the Website, or does not allow the acceptance of the use of cookies in any case. More information about the general use of cookies and the methods of blocking or limiting them can be found on the websites https://cookiepedia.co.uk/all-about-cookies and http://www.allaboutcookies.org/. You can also delete cookies from the computer or device you use, whenever you want. However, it is noted that by not accepting cookies or some of them, some of the features of a website may not be fully available. The LAMPSIS Website also uses “internet tags”. This method is used to measure the response of visitors to the Websites. LAMPSI assures that, through “internet tags” and cookies, personal, identifiable information about website visitors, such as names, addresses, email addresses or telephone numbers, is NOT collected or sought.
-What applies to the LAMPSI Website regarding children’s personal data?
LAMPSI undertakes not to process personal data from visitors/users of its Website under the age of sixteen (16), without having previously obtained the consent of the person who has parental responsibility for the child (parent or guardian), through direct communication, outside of an electronic connection or via the internet.
-What about links to other websites?
The LAMPSI Website may contain references via hyperlinks to other websites, for the content and services of which LAMPSI bears no responsibility, nor does it guarantee their continuous and secure accessibility. LAMPSI should under no circumstances be considered to accept or adopt the content or services of the hyperlinked websites or to be linked to them in any way. The respective beneficiary of this website is solely responsible for any problem that may arise during the use of the aforementioned websites. In the case of hyperlinks to other websites, LAMPSI is not responsible for the terms of management and protection of personal data that they follow. We use social media to present the work and services of LAMPSI through widely used and modern channels. LAMPSI’s use of social media is specifically highlighted on our Website. For example, you can watch informative videos by health scientists who staff LAMPSI clinics, which we post on our personal “YouTube” page, and follow (from our Websites) our links on Twitter and LinkedIn.
LAMPSI strongly encourages users to consult the respective policy of each third party (e.g. search engine companies, social media companies such as Facebook, Linkedin, Twitter, etc.) in order to be informed about the practices they follow to protect their personal data.
The LAMPSI Website may contain material with advertising/informational content, purpose and nature. LAMPSI bears no responsibility towards the visitor/user, as well as any third parties, for any illegal act or omission, inaccuracy or failure to comply with the laws and regulations of any country or the European Union in relation to the content of these updates. LAMPSI is not obliged to examine and does not examine the legality or otherwise of the informational material displayed on the above websites and therefore cannot be held liable in any way. This responsibility lies with the advertisers, sponsors and/or creators of the displayed advertising material.